Our Condolences

Posted by on August 31, 2014 at 3:10 PM

It is with a heavy heart that we announce the passing of 5 year old Jasper.  In a nationwide tribute, we'd love for you to join us at 1:45 Central Time on Saturday, September 6, 2014 (shortly after his memorial service) to release "Balloons for Bubba".  Be sure to video tape the releasing of your Blue, Red and White balloons and share on the Lesch Nyhan Syndrome Facebook Group Page.

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Reply J Rex
8:23 PM on September 30, 2014 
I was out enjoying a sunny day on our farm in Southeastern Ohio, when I noticed an object in the woods. I discovered a red balloon with Jasper's picture. Tears came to my eyes when I read his story. We couldn't believe that this balloon had traveled so far and ended up in our rural area. As parents and grandparents, we were touched by this memorial and wanted the family to know where the path of one of their balloons traveled. One balloon touched our hearts as we're sure Jasper touched everybody's life that he met. May God Bless. We are praying for a cure.
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