News

Love Never Sinks - LNS Meet and Greet

Posted by pegn12@gmail.com on May 29, 2013 at 6:35 PM

We are so excited to announce our first LNS convention!

It will take place Thursday, August 22 through Sunday August 25, 2013.


 




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6 Comments

Reply Melissa Papaioannou
6:31 PM on July 2, 2013 
Hello, Can you send me the details on the meet and greet we would love to try to come.
Thank you
Melissa
Reply pegn12@gmail.com
6:21 PM on July 5, 2013 
Dear Melissa,
Most of the details are listed on a post on the website under the News tab.
The dates are Aug 22-25, 2013. The loacatoon is Clarksville IA. The 22nd will be a simple gathering and meeting each other. Friday, Aug 23, Dr. Nyhan will be there and Saturday Aug 24, we will have a nephrologist, a behaviorial therapist, a pediatrician and someone that can provide advocacy assistance with home health care all of the speakers have worked with and know Lesch-Nyhan very well. Sunday will be a simple farewell brunch.
We will have some meals provided as well as activities and fun for your children. It is a low key event mostly designed for families to meet one another and for connections to be formed.
There is lodging information posted on the tab I mentioned earlier.
Please let us know if you can make it for sure. It looks like we have ten families already, we think it will be the largest group of LNS families together ever!
You are welcome to give me a call if you have further questions, 630-292-3057 or Michelle Lucas at 319-961-0398.
Many blessings,
Peggy Young
Melissa Papaioannou]
Hello, Can you send me the details on the meet and greet we would love to try to come.
Thank you
Melissa
[/Melissa Papaioannou]
Reply christine baker
11:06 AM on July 6, 2013 
This is really exciting. we are going to try our hardest to get there. we did attend one way back in baltimore many years ago. my son philip 42yr old with LND can't wait.
Reply CharlesLed
9:57 AM on September 2, 2017 
Show more!..
Reply CharlesLed
4:03 PM on October 8, 2017 
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3:38 AM on March 29, 2019 
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