Lesch-Nyhan Syndrome families having fun!

Family Support/Assistance Center

Family Picnic after the 5K

Helpful Resources

2014 Annual Conference

The 2nd Annual Conference and 5K fundraiser were a huge success.  We welcomed 5 individuals and their families. Guest speakers Dr. Jinnah and Dr. Eddey provided invaluable information on medications and behavior support.  We are grateful for their knowledge.

Dr. Gary Eddey from Matheny

Dr. Gary Eddey, from Matheny Institute in NJ, speaking to families at the 2014 Conference.



If you are a parent, family member, caregiver or medical professional and would like to speak with someone directly about Lesch Nyhan Syndrome and the support available through Love Never Sinks, we would love to hear from you.  We are excited to provide LNS Assistance for everyone in the United States.