We have hope as an anchor for Lesch-Nyhan Families to keep them safe and secure.
Love Never Sinks is an organization founded to offer assistance to individuals and their families living each and every day with Lesch-Nyhan Syndrome. Our purpose is to help......We support the individuals and their families first with love and compassion, we will come to visit you anywhere in the United States. We aim to empower parents to be advocates for their children and to assist parents with finding appropriate resources.
 We will fund the shipment of supplies and equipment from one family to another. 
We will also be creating awareness in the medical community by distributing pamphlets and information to medical peronnel throughout the country.

Our 2nd Conference was an exciting event.  We had returning families along with new ones attend this year.  We heard from both Dr. Eddey and Dr. Jinnah, sharing their experiences with both behavior modifications and medications.  In addition, we held a 5K, that brought many participants.  Take a moment to view the video below.  Also, check out our NEWS, PHOTOS and FAMILY CENTER tabs at the top of the page for updates and ideas that we came up with.  Everyone enjoyed themselves and we are already in the planning phase for next year's conference!


We look forward to seeing you there next year!

 
Love Never Sinks logo

If you are interested in supporting Love Never Sinks financially please click on Webstore tab above to donate via credit card.

checks can be made out to 


love Never sinks 

962 first st 

batavia il 60510

 

 

 

Balloons for Bubba


Thank you to everyone who supported us in thoughts and prayers for The Marklund family in their loss of Jaspar. 

If you have found a balloon we would love to hear from you! Please click on the News tab to share a balloon story by commenting on the Condolences post. Thank you so much! We would love to send your messsages to the famliy!


Contact Information:

Michelle Lucas

michelle@loveneversinks.org 

319-961-0398

Peggy Young 

 peggy@loveneversinks.org 

630-292-3057 

Amy Laws at amy@loveneversinks.org

614-354-9931



2013 5K in Chicago, IL
The 2nd Annual Run/Walk/Roll 5K
Sunday, September 28th, 2014 
Gahanna, OH

Please join us for our second annual event, in Central Ohio, to support individuals with Lesch-Nyhan and their families!  Click on the Get Involved/Events Tab for details and to get registered. 

The 5k is designed for runners, walkers and rollers alike, so anyone can participate! 

See the WEBSTORE  for details regarding registration for the 5k. You will also find a registration form for the 5k on the Get Involved/Events Tab

We hope to see you there!!

Love Never Sinks for Lesch-Nyhan Syndrome 5K Run/Walk/ROLL!!! 
OCTOBER 19 & 20, 2013
 
The 5k events in  IL and OH were a smashing success! We had over 70 participants runners, walkers and rollers alike! There were a total of four LNS families as well as one other participant in a wheelchair, love it, love it! Not to mention strollers, dogs and a few who courageously rode their bikes or managed just 1k!
 
Thank you to all of our sponsors, particpants and donors alike! We were able to raise over $2000.00 thanks you your efforts  over that one weekend!
 
The funds will be used to connect and assist event more LNS families and will go a long way in supporting next years conference! 
 
Check out the Central Ohio chapter at the website below:
5K participants in Chicago

We will be an anchor for you in times of rough seas and a lifeline when you feel all alone with Lesch-Nyhan.