Bereavement
Supporting You in Love and Loss
As an organization that values every child and considers them part of our extended family, we want to express our heartfelt condolences for your loss. Your child's memory will forever hold a special place in our hearts, and we’re here to support you through this difficult time in any way we can.
Our Bereavement Memorial Grant offers financial assistance to help ease the burden of funeral services, memorial items, or other related expenses. We can work directly with vendors and service providers on your behalf, helping to lessen one of the many stresses families face during this difficult time.
We also invite you to join our private Loss & Support Facebook group. This compassionate community connects families who have experienced similar loss, offering a safe place to share memories, find understanding, and support one another.
As an organization that values every child and considers them part of our extended family, we want to express our heartfelt condolences for your loss. Your child's memory will forever hold a special place in our hearts, and we're here to support you through this difficult time in any way we can.
Above all, please know that you are not alone. Whether you need practical support, someone to listen, or simply a community that understands, we are here to walk alongside you every step of the way.
Our Memorial Page is a place to honor and remember the incredible individuals with Lesch-Nyhan syndrome who have touched our lives. If you would like your loved one to be included, we warmly invite you to share a favorite photo along with their name and, if you wish, a few words about who they were. Whether it's a special memory, something that made them smile, or simply the love they brought into the world, your contribution helps preserve their legacy and reminds other families that they are not alone. Together, we can celebrate each life with dignity, love, and remembrance.
For those who wish to honor your child's memory, a gift to Love Never Sinks is a meaningful way to celebrate their life while helping provide support, resources, and hope to other families affected by Lesch-Nyhan syndrome. Family and friends who would like to make a donation in your loved one's memory can do so using the link below.
If you would also like to leave a lasting legacy by advancing research, you can learn more about our voluntary Mortality Study. Participation is entirely optional and, when the time feels right, offers an opportunity to help researchers better understand Lesch-Nyhan syndrome and improve care for future generations.
Honor the memory of someone special by making a gift that brings comfort and support to families in need. Your remembrance donation helps fund vital services that provide essential assistance to those facing challenges and compassionate care to families experiencing recent loss.
By giving in memory of a loved one, you’re helping us reach families who need it most, ensuring their loved ones are honored through acts of kindness and support.
If you know anyone who would like to contribute, please share this link: https://givebutter.com/LNMemorial
“Let their light continue to shine by making a difference in the lives of others.”
— Anonymous
If, at some point in your healing journey, you feel ready and would like to honor your loved one's legacy by contributing to future research, we invite you to learn about our Mortality Study. This completely voluntary study helps researchers better understand the long-term outcomes and causes of death associated with neurogenetic disorders, with the goal of improving care for future generations. If and when the time feels right, you can learn more or participate by visiting the Mortality Study page.