Events
Stay connected with the Lesch-Nyhan community through upcoming Love Never Sinks events. Our meetings and gatherings bring together families, researchers, and advocates to share the latest updates in Lesch-Nyhan research, discuss ongoing projects, and build stronger connections worldwide. Each event is an opportunity to learn, collaborate, and support one another as we work toward greater understanding and hope for all those affected
November 23 Meeting | Love Never Sinks Updates & Global Lesch-Nyhan Research
Love Never Sinks invites families, researchers, and advocates to our upcoming meeting on November 23 at 10 AM (Central US). We’ll be sharing the latest updates from the NIH, new findings from global Lesch-Nyhan studies, and progress from ongoing research collaborations. This is a great opportunity to stay connected, hear what’s new, and learn how Love Never Sinks continues to support the global research community and families impacted by Lesch-Nyhan.
MDBR Bike Ride
At Love Never Sinks, we are a passionate community of families, advocates, and researchers dedicated to making a difference for those affected by Lesch-Nyhan Disease. Our journey began with love—for our children, for each other, and for a future where families have hope and answers.
We believe in supporting families, empowering research, and driving change. That’s why we’re raising funds for our Research Readiness program—to ensure scientists have the resources they need to move discoveries forward and to connect families with the latest advancements in treatment and care.
A portion of every dollar raised will also help provide direct support to families in need, offering them resources, guidance, and a compassionate community as they navigate this challenging diagnosis.
All funds raised helps us build a stronger foundation for research and provides support to families navigating this challenging diagnosis. Together, we can make a lasting impact!
Join us in this mission. Donate today and be part of the change! 💙
#LoveNeverSinks #SupportFamilies #FundResearch #ResearchReadiness #Suporting Families