Programs and Services

Programs:

Love Never Sinks • Lesch-Nyhan

Join us in supporting Love Never Sinks, a dedicated organization making a difference in the lives of individuals and families affected by Lesch-Nyhan syndrome.

Your participation helps provide crucial resources and support to those who need it most. Explore ways to contribute, donate, get help and connect with our community through our social media platforms.

If you or someone you know is affected by Lesch-Nyhan syndrome, please don’t hesitate to reach out to us for support and resources.

Programs and Services

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Supporting Community

Programs and Services

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Community and Support

  • Bereavement Memorial: Honor the memory of loved ones affected by Lesch-Nyhan syndrome through our memorial services.

  • Christmas Gift Exchange: Connect with other families during the holiday season through our annual gift exchange.

  • Community Highlights Inspiring stories of resilience and hope, shared by individuals, caregivers and families living with Lesch-Nyhan syndrome.

  • QR Code Business card to help explain LN to people in the Community

  • Community Meeting Slide Decks see Slide Decks from previous meetings

  • Real time WhatsApp Love Never Sinks Updates send us an email to be added to the group

  • Stories from the Heart Each story shared here comes straight from the heart — moments of struggle, strength, and hope from families touched by Lesch-Nyhan. Their voices remind us that love never sinks, even in the hardest times. We invite you to read, feel, and be inspired by their journeys — and to share your own story so together we can one day create a book that celebrates the courage and love within our community.

Learn More

  • Past Presentations: Access recordings of previous educational presentations and webinars on various topics related to Lesch-Nyhan syndrome.

  • Resources Explore a collection of valuable resources, including links to scientific papers, informative videos on Lesch Nyhan, printable guides, connections to global support groups, and financial assistance options.

  • Studies and Research Stay informed about the latest studies and research projects Love Never Sinks has supported. Here, we share updates on ongoing and completed research, breakthroughs, and collaborations aimed at advancing understanding and treatment options for our community.

Need Help?

  • Application for Assistance: Apply to Love Never Sinks for financial aid, medical equipment, or other resources to support your family's needs.

  • Mission Impact: Help us learn more about the impact of our programs on individuals and families affected by Lesch-Nyhan syndrome.

Support Your Community & Love Never Sinks

  • Donation Page: Make a generous contribution to support our mission and programs.

  • Volunteer: Lend your time and heart to support families, connect the community, and make a difference with Love Never Sinks

  • Share your Story Share your family’s journey with Lesch-Nyhan disease and help others feel less alone. Love Never Sinks invites parents and caregivers to contribute their stories of strength, hope, and connection.

  • Media Release: Fill out our media release to share our story with the community.

  • Ideas for Future Presentations: Submit your ideas for future educational presentations and webinars.

  • Fundraise: Organize a fundraising event or campaign to help raise awareness and funds.

Events

Merch

  • Show Your Support with Love Never Sinks Merchandise! Get your very own Love Never Sinks t-shirt or sweatshirt! Wearing our merch is a great way to spread awareness and show solidarity with families affected by Lesch Nyhan. Plus, all proceeds go directly to supporting our mission. Visit our website to shop now and make a difference today!


Two young women standing close together, smiling, wearing blue tank tops with Love Never Sinks Lesch-Nyhan graphics, and denim shorts.
A birthday greeting webpage featuring large 3D letters spelling 'Happy Birthday', a smiling man in a light blue shirt with a backpack holding envelopes, a Siamese cat wearing a birthday hat, and a blue mailbox, with the LNS logo and social media icons in the top corners.
Poster for the Million Dollar Bike Ride 2025, scheduled for Saturday, June 14 at 7:30 AM on the UPenn campus in Philly. Registration is now open, promoting fundraising for rare disease research, with a city skyline, biking silhouettes, and the website URL.
A digital illustration of a white dove with wings spread, showing a gradient of pastel colors, against a white background.
Logo with a Santa hat, a shield, a red heart, and the text 'LOVE NEVER SINKS' and 'RAISING AWARENESS FOR LESCH-NYHAN SYNDROME' for the Christmas gift exchange
Multiple hands of different ages holding a red heart-shaped object together.
Two open hands gently holding a small yellow flower with green leaves, blurred background.

Check out the 2025 Million Dollar Bike Ride

Click here for more details!

Four women on bicycles crossing the finish line at the Million Dollar Bike Ride event, wearing pink tutus and helmets, cheering and smiling, with a large colorful banner overhead and spectators on the side.
A woman and a young boy living with Lesch-Nyhan enjoying an outdoor hike on a wooden bridge surrounded by lush green trees.

Connect with us

Instagram logo with a square shape, rounded edges, and a camera icon in the center.
Red circular play button icon with a white triangle in the center.
A blue line drawing of a globe with gridlines.
Envelope icon inside a circle 
LNS@LoveNeverSinks.Org
Facebook logo with a dark blue circular background and a white lowercase 'f' in the center.
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