Share your family’s journey with Lesch-Nyhan disease and help others feel less alone. Love Never Sinks invites parents and caregivers to contribute their stories of strength, hope, and connection.

Share Your Story

Every story matters. 💙

At Love Never Sinks, we believe that the most powerful way to inspire hope and understanding is by sharing lived experiences. Whether you’re a parent, sibling, or caregiver of someone living with Lesch-Nyhan disease, your voice can offer comfort, insight, and connection to others walking a similar path.

By sharing your story, you help build a stronger community — one rooted in empathy, awareness, and support. Submit your experience below, and let your words become a beacon of hope for families around the world.

Close-up of an open book with pages turned over, with a blurred window or outdoor scene in the background.

Whether your story is filled with hope, lessons learned through challenges, or both, your experience matters. Sharing it can inspire and comfort others in the Lesch-Nyhan community.


📝Share – If you prefer, you can write your story in your own words without following the template.

Share your story

📝 Written Form Template – This guided template includes 10 simple questions to help you organize your story. You can answer only what you feel comfortable sharing, and even short answers are meaningful. We can have one of our Volunteers help write the story if you would like.


Share your Story Template

Stories from the Heart

Stories from the Heart - Living with Lesch Nyhan
A stack of colorful books with different colored covers, including green, blue, white, red, and yellow, arranged vertically on the left side of the image.

What we are Working Towards

Our hope is that one day, these stories can be collected into a book of experiences to share with the broader community, preserving the voices, lessons, and love of families living with Lesch-Nyhan syndrome. By sharing your story, you help others feel less alone and contribute to a lasting legacy of hope and connection.


Back to Participate/programs