Love Never Sinks was founded in 2013 by Michelle Lucas and Peggy Young, two mothers who tragically lost their sons to Lesch-Nyhan disease. United by their grief and determination, they made a promise to fight not only for their boys but for all families affected by this rare genetic disorder.

Together, Michelle and Peggy dedicated themselves to sharing information, building a supportive community, and helping children with Lesch-Nyhan lead healthier, happier lives.

Their journey began with personal heartbreak. Michelle’s sons, Keith and Daniel, were both diagnosed with Lesch-Nyhan, a condition that leads to severe developmental challenges, self-injurious behavior, and a range of medical complications. In the face of these overwhelming challenges, Michelle and Peggy channeled their pain into action, determined to ensure no family felt as lost and isolated as they had.

In the early years of Love Never Sinks, Michelle and Peggy organized three in-person conferences, bringing together families and leading experts like Dr. William Nyhan, Dr. Gary Eddey, and Dr. Hyder Jinnah. These events provided crucial knowledge and fostered a sense of community that would become the cornerstone of their mission.

Though Michelle has since moved on from her leadership role, Love Never Sinks remains steadfast in the vision that she and Peggy created.

We continue to advocate for families, support research, and ensure that every child affected by Lesch-Nyhan receives the resources and care they deserve.

In honor of Michelle and Peggy’s legacy, Love Never Sinks is committed to walking the path they started—offering hope, guidance, and unwavering support to the Lesch-Nyhan community.