Our 2nd Conference was an exciting event. We had returning families along with new ones attend this year. We heard from both Dr. Eddey and Dr. Jinnah, sharing their experiences with both behavior modifications and medications. In addition, we held a 5K, that brought many participants. Take a moment to view the video below. Also, check out our NEWS, PHOTOS and FAMILY CENTER tabs at the top of the page for updates and ideas that we came up with. Everyone enjoyed themselves and we are already in the planning phase for next year's conference!
We look forward to seeing you there next year!
A great big THANK YOU to Mr Lehman for the awesome video of our 2014 Conference!!
Thank you for supporting our Love for Lesch-Nyhan
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Love Never Sinks
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Balloons for Bubba
Thank you to everyone who supported us in thoughts and prayers for The Marklund family in their loss of Jaspar.
If you have found a balloon we would love to hear from you! Please click on the News tab to share a balloon story by commenting on the Condolences post. Thank you so much! We would love to send your messsages to the famliy!
First Annual "Teddy Walk" 5k 12-5-2020
Please join us in remembering Teddy on this December morning. We miss him so much today and every day! You can walk it, run it, rolls or stroll it. See the donation button to the left to support other families with LNS. Please post pictures, we love sharing our love for him together!! Thank you to Katie Sullivan and Lisa DeWitt for the inspiration to make this day possible!!! Thank you one and all for your support!!! Many blessings!
We will be an anchor for you in times of rough seas and a lifeline when you feel all alone with Lesch-Nyhan.