Share your Story in Pictures
A picture can tell a powerful story. By sharing your photos, you’re helping others better understand life with Lesch-Nyhan—whether it’s creative ways to adapt, joyful moments, or everyday routines. Visuals can be especially meaningful for families who are new to the journey or learn best through seeing. Together, these shared snapshots create a gallery of hope, understanding, and connection for our Lesch-Nyhan community.
Have a creative setup, homemade device, or adaptive tool that makes life a little easier? We’d love to see it! Sharing photos of what works for you can make a real difference for others walking a similar path. Whether it’s a clever wheelchair modification, a custom-built support, or a simple everyday solution, your ideas can spark inspiration and hope for other families. Every shared photo helps build a community of learning and support—showing that together, we can make the journey a little smoother for everyone.