Teeth Removal
Parent Stories on Teeth Removal for Children with Lesch-Nyhan
As parents, we all want to keep our children safe and free from harm. For families of children with Lesch-Nyhan, one of the hardest challenges is coping with the uncontrollable biting that can cause painful injuries. Many parents have found that teeth removal, while a difficult decision, was ultimately the kindest choice for their child. It has brought peace of mind, safety, and the chance for a better quality of life. The stories shared here come from parents who have walked this path, offering comfort, honesty, and hope to others who may be facing the same decision.
Testimonials
Hugs. It’s hard to make the decision, but I don’t know anyone who regrets removal - only regrets not doing it sooner.
We also tried everything, and our “wake up call” to remove was one morning when we woke up to screaming and thought he had lost part of his lip or tongue due to the amount of blood. We realized we were keeping the teeth for us, not him. He was instantly a happier, calmer kid after removal and we felt awful to putting it off so long.
I don’t say that to diminish how gut wrenching it is to make the decision to remove. Just to assure you that it’s the right one
One thing that might help you.. I was so obsessed with how different his smile would be, I couldn’t imagine his face without the smile as I knew it. But honestly, within days of removal he was smiling so much and I didn’t even notice the missing teeth - just how genuinely happy he was for the first time in a long time.
Kate - Mom of Jack
