At Love Never Sinks, we know how important it is for families to feel connected, informed, and supported on the rare disease journey. That’s why we’re excited to share an opportunity to learn and connect with others in the community.

Please check out the Great Plains Summitpage to learn more, review the agenda, and then RSVP!

The Minnesota Rare Disease Advisory Council is hosting a virtual watch party of the 2026 Great Plains Rare Disease Summit, happening May 7–8, 2026. We’re proud to collaborate with Erica Barns through her work with the Minnesota Rare Disease Advisory Council—and we’re excited to share an upcoming event she’s part of, which Love Never Sinks will also be attending.

Hosted by Sanford CoRDS Rare Disease Registry, this annual event brings together doctors, researchers, and advocates who are working to better understand rare diseases and improve care for individuals and families. It’s a great chance to hear about new research, real-world experiences, and ways families can get involved.

This year’s summit will include a special focus on skeletal and craniofacial rare diseases, along with sessions designed to support both the medical community and families. We’re also excited to share that Erica Barns from the Rare Disease Advisory Council will be speaking as part of the event.

The watch party is a welcoming way to engage—whether you attend for a short time or the full event, you’ll be joining a community that understands the journey.

MN Rare Disease Advisory Council Watch Party Details
📅 Thursday, May 7 | 3:00–5:30 PM
📅 Friday, May 8 | 8:30 AM–5:00 PM
📍 Spruce Tree Center, St. Paul

Please RSVP here: https://forms.microsoft.com/g/nHG5TuLSpt

Event Details at Sanford

📅 Thursday, May 7 | 3:00–5:30 PM
📅 Friday, May 8 | 8:30 AM–5:00 PM
📍 Sanford Center, Sioux Falls, SD or Virtually via Zoom

Register here zoom through Cords/Sanford

We encourage families, caregivers, and supporters to attend and take advantage of this opportunity to learn, connect, and feel supported.