Together
Readiness 2 Action
We’re thrilled to launch our 2025–2026 fundraising campaign!
Your generosity will primarily support our Research Readiness initiative, helping researchers and advancing vital Lesch-Nyhan related studies.
A small but meaningful portion of every gift will go directly to supporting families in our community.
With your support, Love Never Sinks continues to advance research and provide vital support for families affected by Lesch Nyhan. We are working toward our next research grant, giving scientists the opportunity to deepen understanding and develop meaningful treatments. Guided by our Medical and Scientific Advisory Board, every decision meets strong scientific criteria, fiscal responsibility, and a focus on what is safe and impactful for children and families. Beyond research, we offer family support programs, providing resources, education, and practical assistance so families can thrive. By combining expert oversight with community values, we ensure every dollar has maximum impact—supporting credible, life-changing research while lifting families through times of need.
There is so much on the horizon, and together we can make it possible.
Learn More about how we Support Families
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Fueling Hope Through Research Readiness
‘Research Readiness’ refers to the state of being adequately prepared to engage in and support research activities effectively. It involves having the necessary infrastructure, resources, knowledge, and strategic planning to facilitate meaningful and impactful research.
Key Components of Research Readiness
Patient & Community Engagement – Education in research readiness empowers families with clear, accessible information on their disease, clinical trials, genetic therapies, advocacy, and research participation. It helps them make informed medical decisions, advocate for better care, and connect with relevant studies. By bridging knowledge gaps, fostering confidence, and encouraging community engagement, families play a vital role in shaping research priorities, contributing data, and driving progress toward better treatments.
Strategic Planning – Setting clear objectives, timelines, and methodologies to guide research efforts.
Collaboration & Partnerships – Establishing networks with researchers, clinicians, industry partners, and advocacy groups.
Education & Awareness – Providing training and information to stakeholders on research processes, goals, and expectations.
Regulatory & Ethical Compliance – Understanding and adhering to legal, ethical, and institutional research requirements.
Data Collection & Management – Ensuring high-quality, standardized, and accessible data for research purposes.
Funding & Resource Allocation – Securing financial and material resources to support ongoing and future research.
Our Commitment to Responsible Science
At Love Never Sinks, we take research readiness and scientific investment seriously. Scientific programs, and allocation of research grants is carefully reviewed by our Medical and Scientific Advisory Board. This ensures that all decisions are guided by strong scientific criteria, fiscal responsibility, and a focus on what is safe and meaningful for children and families. By combining expert oversight with community values, we make sure that every dollar is invested wisely—supporting research that is both credible and impactful.
We are currently raising money for our 2025-2026 Research Grants
At Love Never Sinks, we take research readiness and investment seriously. Grants are reviewed by our Medical and Scientific Advisory Board to ensure decisions meet strong scientific criteria, are fiscally responsible, and prioritize what is safe and meaningful for children and families.