Honoring the Legacy of
Dr. William Nyhan
It is with deep sadness and profound gratitude that we honor the life and legacy of Dr. William Nyhan, whose dedication to children and families affected by Lesch-Nyhan Syndrome changed the course of this disease forever.
In honor of his extraordinary legacy, Love Never Sinks is proud to establish the:
The Dr. William Nyhan Memorial Education Fund
This memorial fund will support Love Never Sinks in continuing one of the missions Dr. Nyhan valued most — education, collaboration, and connection within the Lesch-Nyhan community.
Funds raised will help:
Bring researchers, physicians, and specialists to speak with families
Create educational conferences and virtual learning opportunities
Support community awareness and advocacy efforts
Help families access trusted information and resources
Continue building bridges between families and the scientific community
Dr. Nyhan believed that families mattered, that knowledge mattered, and that every child deserved to be seen beyond their diagnosis. His influence will continue to guide the rare disease community for generations to come.
We invite our community, friends, researchers, and supporters to honor Dr. Nyhan’s life by helping us continue the work he cared so deeply about.
Together, we can ensure his legacy lives on through education, connection, compassion, and hope.
Obituary: William L. Nyhan, MD, PhD. (March 13, 1926– February 11, 2026)
An Open Letter to Dr. William Nyhan
Dear Dr. Nyhan,
Thank you for the life you dedicated to children and families affected by Lesch-Nyhan Syndrome.
For decades, you gave this community your time, your knowledge, your compassion, and your heart. You helped families find answers in moments filled with uncertainty and helped create understanding for a disease many in the world had never heard of.
But beyond your research and accomplishments, families remember your kindness. They remember feeling heard, supported, and cared for.
Because of you, families felt less alone.
Your work shaped the future of Lesch-Nyhan Syndrome research and care, but your legacy reaches even further — into the lives of every family you encouraged, every child you fought for, and every person you inspired to continue learning and advocating.
At Love Never Sinks, we are committed to carrying your legacy forward through education, community, advocacy, and hope.
Thank you for believing our children mattered.
You will always hold a special place in the hearts of the Lesch-Nyhan community.
With gratitude and love,
Love Never Sinks 💙