Each story shared here comes straight from the heart — moments of struggle, strength, and hope from families touched by Lesch-Nyhan. Their voices remind us that love never sinks, even in the hardest times. We invite you to read, feel, and be inspired by their journeys — and to share your own story so together we can one day create a book that celebrates the courage and love within our community.

💙 Read Stories from the Heart

Share your Story

A woman and a young boy on a boat with a city skyline and water in the background. The woman is smiling, wearing a green coat, and a hat with a pink pom-pom. The boy is seated in a wheelchair, smiling, dressed in a dark jacket. Two photos are included: one of them on the boat, and another of a young boy at a basketball game in New Orleans.

Luggage stacked on wheelchairs at an airport, with travelers waiting in the background.

Page from a memorial or tribute article with photos of Kieran Halfpenny and his sister Seana Halfpenny, featuring a quote about the importance of family and starting anew after loss. The page includes a detailed recap of Kieran's life, achievements, and struggles with cerebral palsy from childhood to young adulthood.

Photographs of a group of people, including a young man in a wheelchair with a big smile, and other individuals, in different settings.

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