Join families, caregivers, clinicians, and advocates for a weekend centered on connection, learning, and community for those impacted by Lesch-Nyhan syndrome (LNS).

The conference will begin Friday evening with a welcome meet-and-greet, offering a relaxed opportunity for families and attendees to connect and get to know one another.

Saturday will be a full conference day featuring speakers and breakout sessions designed to meet a range of interests and needs. Sessions may include both science-focused discussions and practical conversations around daily care, disease management, and family support. To ensure an inclusive and supportive environment, a quiet room and child care space will be available throughout the day.

The weekend will conclude on Sunday morning with a community breakfast and informal send-off, providing time to reflect, share experiences, and continue building connections before heading home.

This gathering is designed to create space for learning, support, and meaningful connection—bringing together the LNS community to share knowledge, strengthen relationships, and move forward together.