Rare Disease Day is a time to come together, raise awareness, and honor the individuals and families living with rare conditions like Lesch-Nyhan disease. Join Love Never Sinks on February 28, 2026 as we see the rare, share real stories, and strengthen a community built on compassion, research, and hope.

“Every zebra has a story. This is ours. 💙”

SEE THE RARE.
SHARE THE DATA.
CHANGE THE FUTURE.

Your experience matters.
Join the Lesch-Nyhan Disease Registry and help shape future research.