Medical & Scientific Advisory Board
Guiding Lesch-Nyhan Research with Integrity and Collaboration
The Love Never Sinks Medical & Scientific Advisory Board (MSAB) is a volunteer group of leading researchers, clinicians, and advocates dedicated to advancing understanding, treatment, and quality of life for individuals and families affected by Lesch-Nyhan disease.
This international board plays a vital role in guiding Love Never Sinks’ scientific direction — ensuring that every project and partnership aligns with our mission to promote research readiness, data transparency, and meaningful collaboration across the global rare disease community.
Our Team
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Dr. Hyder "Buz" Jinnah
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
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Dr. Rosa Torres
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
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Dr. Jasper Visser
It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.
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Dr. Melania Abreu Gonzalez
Description goes here
Our Mission and Purpose
The Medical & Scientific Advisory Board provides expert guidance in:
Research Readiness: Supporting registry development, data quality, and natural history study design.
Emerging Science: Evaluating new discoveries, therapeutic approaches, and mRNA or gene therapy research.
Community Engagement: Helping families understand complex research developments in clear, accessible language.
Strategic Direction: Advising on research funding priorities and building connections with global partners.
Through collaboration and open dialogue, the MSAB ensures that Love Never Sinks remains proactive, informed, and aligned with the highest scientific and ethical standards.
Our Commitment to Responsible Science
At Love Never Sinks, we take research readiness and scientific investment seriously. Scientific programs, and allocation of research grants is carefully reviewed by our Medical and Scientific Advisory Board. This ensures that all decisions are guided by strong scientific criteria, fiscal responsibility, and a focus on what is safe and meaningful for children and families. By combining expert oversight with community values, we make sure that every dollar is invested wisely—supporting research that is both credible and impactful.