A 501c3 NON-PROFIT ORGANIZATION
Learn
Learn about Lesch-Nyhan: From the fundamentals and typical signs to current research, our resources help families stay informed and empowered.
Navigate
From first steps after diagnosis to daily support with tools, therapies, and behaviors, we provide families guidance—and a QR code for wheelchairs so others can quickly learn about Lesch-Nyhan.
Resources
Explore helpful Lesch-Nyhan resources created together with families, doctors, and researchers — including videos, guides, and studies.
Programs
Through tailored programs, Love Never Sinks supports families living with Lesch-Nyhan with resources, guidance, events, and connections.
Love Never Sinks works to create meaningful impact for families affected by Lesch-Nyhan disease through connection, knowledge, and collaboration.
Our Goals are to:
Support families through outreach, community programs, and financial and bereavement assistance.
Advance research by funding scientific studies and preparing the community for participation in future discoveries.
Build awareness of Lesch-Nyhan disease to promote understanding and earlier diagnosis.
Foster collaboration between families, researchers, and advocates to accelerate progress and strengthen the rare disease community.
“Together, we aim to ensure that every family feels supported — and that every step in science brings us closer to answers and hope.”
Latest LNS Program Updates
Click on photo for updates/information
Ways to be Involved in Research
Supporting Children, Adults, and Families Living with Lesch-Nyhan
Love Never Sinks is committed to empowering families affected by Lesch-Nyhan, championing greater awareness and actionable solutions to improve their quality of life.
Together, we can create meaningful change and offer hope to those impacted by this rare disorder.