
A 501c3 NON-PROFIT ORGANIZATION
Founded by families who have experienced the challenges of Lesch-Nyhan disease firsthand, Love Never Sinks provides resources, education, and support to families worldwide.
We believe that connection and knowledge are the foundation of hope. Through our outreach, programs, and partnerships, we help families find answers, access expert guidance, and stay informed about the latest in Lesch-Nyhan research.
“When families connect, science moves forward — and hope grows stronger.”
Learn
Learn about Lesch-Nyhan and explore the latest research working to improve lives.
Manage
Tools, advice, and support for managing Lesch-Nyhan at home and beyond.
Resources
Explore helpful Lesch-Nyhan resources created together with families, doctors, and researchers — including videos, guides, and studies.
Participate
We’re here for families living with Lesch-Nyhan — offering support, resources, and a welcoming community that understands.
Latest Connections & LNS Program Updates
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Ways to be Involved in Research
Supporting Children, Adults, and Families Living with Lesch-Nyhan
Love Never Sinks is committed to empowering families affected by Lesch-Nyhan, championing greater awareness and actionable solutions to improve their quality of life.
Together, we can create meaningful change and offer hope to those impacted by this rare disorder.
Love Never Sinks works to create meaningful impact for families affected by Lesch-Nyhan disease through connection, knowledge, and collaboration.
Our Goals are to:
Support families through outreach, community programs, and financial and bereavement assistance.
Advance research by funding scientific studies and preparing the community for participation in future discoveries.
Build awareness of Lesch-Nyhan disease to promote understanding and earlier diagnosis.
Foster collaboration between families, researchers, and advocates to accelerate progress and strengthen the rare disease community.
Together, we aim to ensure that every family feels supported — and that every step in science brings us closer to answers and hope.