Text reading 'Love Never Sinks' and 'Lesch-Nyhan' in bold blue letters

A 501c3 NON-PROFIT ORGANIZATION

Heart Image made of many pictures of Children with Lesch-Nyhan

Founded by families who have experienced the challenges of Lesch-Nyhan disease firsthand, Love Never Sinks provides resources, education, and support to families worldwide.

We believe that connection and knowledge are the foundation of hope. Through our outreach, programs, and partnerships, we help families find answers, access expert guidance, and stay informed about the latest in Lesch-Nyhan research.

“When families connect, science moves forward — and hope grows stronger.”

Small Boy with Lesch Nyhan Syndrome looking at a book and smiling

Learn

Learn about Lesch-Nyhan and explore the latest research working to improve lives.

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Manage

Tools, advice, and support for managing Lesch-Nyhan at home and beyond.

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Resources

Explore helpful Lesch-Nyhan resources created together with families, doctors, and researchers — including videos, guides, and studies.

a boy with Lesch-Nyhan Syndrome playing Baseball with a coach and a sign that says "go Jack"

Participate

We’re here for families living with Lesch-Nyhan — offering support, resources, and a welcoming community that understands.

Latest Connections & LNS Program Updates

Click on photo for updates/information

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Ways to be Involved in Research

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Supporting Children, Adults, and Families Living with Lesch-Nyhan

Love Never Sinks is committed to empowering families affected by Lesch-Nyhan, championing greater awareness and actionable solutions to improve their quality of life.

Together, we can create meaningful change and offer hope to those impacted by this rare disorder.

Learn more about what we do

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Two children in wheelchairs surrounded by colorful bubbles, smiling and playing indoors.

Lesch-Nyhan Info Welcome Page

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Love Never Sinks works to create meaningful impact for families affected by Lesch-Nyhan disease through connection, knowledge, and collaboration.

Our Goals are to:

Support families through outreach, community programs, and financial and bereavement assistance.

Advance research by funding scientific studies and preparing the community for participation in future discoveries.

Build awareness of Lesch-Nyhan disease to promote understanding and earlier diagnosis.

Foster collaboration between families, researchers, and advocates to accelerate progress and strengthen the rare disease community.

Together, we aim to ensure that every family feels supported — and that every step in science brings us closer to answers and hope.