Text reading 'Love Never Sinks' and 'Lesch-Nyhan' in bold blue letters

A 501c3 NON-PROFIT ORGANIZATION

Heart Image made of many pictures of Children with Lesch-Nyhan

Small Boy with Lesch Nyhan Syndrome looking at a book and smiling

Learn

Learn about Lesch-Nyhan: From the fundamentals and typical signs to current research, our resources help families stay informed and empowered.

9 Year old boy in a gait trainer with a cool hat and his arms out in excitement

Navigate

From first steps after diagnosis to daily support with tools, therapies, and behaviors, we provide families guidance—and a QR code for wheelchairs so others can quickly learn about Lesch-Nyhan.

A person with a disability in a wheelchair by a river, smiling and enjoying a view of a rainbow and rainbow-colored sky over green hills.

Resources

Explore helpful Lesch-Nyhan resources created together with families, doctors, and researchers — including videos, guides, and studies.

a boy with Lesch-Nyhan Syndrome playing Baseball with a coach and a sign that says "go Jack"

Programs

Through tailored programs, Love Never Sinks supports families living with Lesch-Nyhan with resources, guidance, events, and connections.

Happy young boy with a big smile, sitting in a wheelchair, wearing a black shirt and a gold championship belt over his shoulder, in an indoor setting with a blurred background.

Love Never Sinks works to create meaningful impact for families affected by Lesch-Nyhan disease through connection, knowledge, and collaboration.

Our Goals are to:

Support families through outreach, community programs, and financial and bereavement assistance.

Advance research by funding scientific studies and preparing the community for participation in future discoveries.

Build awareness of Lesch-Nyhan disease to promote understanding and earlier diagnosis.

Foster collaboration between families, researchers, and advocates to accelerate progress and strengthen the rare disease community.

A woman with brown hair smiling while holding two young children, one with red hair in a tan jacket and the other with a shaved head in an orange jacket, sitting on a green tractor outdoors.

“Together, we aim to ensure that every family feels supported — and that every step in science brings us closer to answers and hope.”

Latest LNS Program Updates

Click on photo for updates/information

Announcement for a community meeting scheduled for November. The flyer highlights topics such as care and support, global research, and community engagement, with a focus on love and support for LESCH-NYHAN syndrome.

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Ways to be Involved in Research

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Close-up of a light-colored microscope in a laboratory setting, with the words "Research Projects" overlaying the image.

Open book with pages curled at the edges, set against a blurred sunset background with the text 'Share your Story' overlaid.

Supporting Children, Adults, and Families Living with Lesch-Nyhan

Love Never Sinks is committed to empowering families affected by Lesch-Nyhan, championing greater awareness and actionable solutions to improve their quality of life.

Together, we can create meaningful change and offer hope to those impacted by this rare disorder.

Learn more about what we do

Group of diverse children and young adults with disabilities smiling and enjoying activities, some in wheelchairs, others using adaptive equipment.

Two children in wheelchairs surrounded by colorful bubbles, smiling and playing indoors.

Lesch-Nyhan Info Welcome Page

Quote in a speech bubble about the importance of practice and self-discipline in monitoring behavior, mentioning that consistent effort reduces anxiety and improves personality.

Smiling woman and young boy taking a selfie at a baseball game, with chain-link fence and spectators in the background.